collecte section Bourgogne

https://www.helloasso.com/associations/association-france-lyme/collectes/section-bourgogne

Schutz für Patienten mit Borreliose und Co-Infektionen - Online Petition Protection for patients with Lyme disease and co-infections


All Europeans may sign this petition begun by German Lyme patients:
Protection for patients with Lyme disease and co-infections
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Due to a bitter dispute opinion in the medical community and the consequent uncertainty of physicians providing care to patients with Lyme disease and other tick-borne infections is not guaranteed sufficiently. Lyme disease and co-infections are due to this dispute a special case, and therefore patients and their doctors need to clarify this trade dispute, a special legal protection. Therefore European Lyme disease patients require a law at the European and the national level, which guarantees their rights to adequate therapy - similar to the laws in the U.S. states of Vermont (from 11/03/2014) and New York (Bill number: A7558A). Through the law should have the following requirements are implemented: 1) duty to inform the treating physician to the patient via the existing medical controversy regarding diagnosis and treatment. Compulsory education of the patient about his freedom to choose the treatment or diagnosis. Guarantee of freedom of choice in relation to therapy. 2) Exclusion of compensation claims, the insurer or physicians associations against those physicians who are not on the recommendations of the European Union Concerted Action Lyme borreliosis (keep EUCALB) or to national guidance. 3 ) Replace the faulty, non-standard ELISA screening test as a screening test by the Western blot. Assumption of the costs for this test by health insurance. Until the development of a standardized and reliable serological tests more attention to the clinical symptoms in medical practice. Mandatory patient education about the deficiency of existing tests. 4) acquisition costs of treatment - even for indexed long-term antibiosis -. by health insurance 5) recognition of the persistence of symptoms in a subset of patients with all social security consequences. 6) Multidisciplinary heterogeneous occupation of all national bodies (guidelines committees, national reference centers) with representatives of different approaches involving all studies. 7) increasing research for diagnosis and therapy. Initiation of long-term treatment studies. 8) establishing a European / national mandatory reporting of Lyme disease and co-infections, including extension of the case definitions. 9) education of the public about the disastrous consequences of a tick bite. 10). Binding training of doctors. The contrary views in the medical community (for lack of evidence) - and the only recommending character of existing guidelines must be part of this development.
Aufgrund eines erbitterten Meinungsstreits in der medizinischen Fachwelt und der daraus...
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